Thanks Christine! “It’s better than you think”…..

Most of you know that I do not have a child with Down syndrome….however I seek to spread awareness…as my friend Christine has coined: “It’s better than you think.”

 

Today I met a woman with a little girl named “A”…she has Down syndrome and is 7 weeks old.

 

I am sickened by what this woman told me today in reference to her pregnancy and then birth of her baby. What she was told by the geneticist, her OB/GYN..and the pediatrician in the hospital following A’s birth:

 

  1. A team of doctors at the OB/GYN office sat her down and her husband and encouraged her to abort her baby.
  2. This same team said that one of the reasons is that she would now be responsible for this child 24 hours a day..she would not have a normal life as a mother.
  3. Her c-section recovery would be worse because her baby has Down syndrome.
  4. That her infant baby would never react to her as a “typical” baby would.  “She will not respond to you..she will not react to you”.
  5. And  this mom needs to go back to work…she is crying as she is telling me this..she said “I have to go back we need the medical insurance, but they told me that no-one would ever watch my baby and that she could never be in daycare”.
  6. The OB/GYN’s office encouraged the abortion and said it would be covered..and that it made more sense as it would be less expensive than the medical expenses following the birth.

OMG!….I sat there with this mama for almost 2 hours…thinking of my friend Christine..and telling A’s mama: “it is better than you think”…and how much joy her baby will bring her…and that her baby is just “plus one..minus nothing”.  She sobbed in my arms as I left…full of happiness..for all of the good that was to come for her little angel.

 

 

How sick that the medical community imprints this in the minds of parents.  Spreading awareness is so important…more so for the educated people who actually do not know anything.

About Kim

My name is Kim Marino and I have been practicing as a licensed speech and language pathologist since 1993. I work on Long Island providing diagnostic evaluations and services to children from birth to age 21. My experience is vast and am proud to say that I work with children that may present with articulation and phonological concerns, oral motor feeding concerns, Down Syndrome feeding, cognitive rehabilitation, auditory processing delays, receptive language delays, cleft palate feeding and sound development and expressive language delays. Most importantly, I am the mother of four amazing children and am happily married to my childhood sweetheart. I feel blessed to have my four children and so lucky to share this journey in life with my husband. I always had it somewhere in my head that I wanted to develop a blog or a website of some sort so that I could provide families with an additional resource....so that parents could help their little ones become a better communicator. And as I was developing this blog....I realized that I also needed to share the stories about my life and my children....and the funny things along the way that help to keep me smiling. Whether you are a working mother or not...finding balance between home, children and life can be a challenge....I hope that my blog helps to bring a smile to your face..and also some tools to help you help your little or big one. I hope you enjoy! Kim
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3 Responses to Thanks Christine! “It’s better than you think”…..

  1. Christine says:

    OMGosh!!! Wow! Those doctors are SO wrong! My girl is almost 4 and she SO responds to me! She isn’t talking yet, but she can sight read about 100 words and knows about 150 signs. All that doctor said is NOT true!

  2. Julinne Moore says:

    Love your response, and I’m so glad you were there for her! I was blessed to work with a child with Down syndrome 10 years ago when I was just out of grad school. She was the highlight of my week…just a three month old baby. Now, she’s a little talker, and brings so much joy to everyone around her. She’s one of the reasons I do what I do!

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